In brief
At 45, Sandra Demontigny has taken a courageous stand for the right to choose a dignified death as she battles a hereditary form of early-onset Alzheimer's. Her advocacy has played an instrumental role in Quebec's new legislation allowing people to plan a medically assisted death long in advance.
As the sun began to set in Lévis, Quebec, 45-year-old Sandra Demontigny found herself in a moment of contemplation, grappling with the profound decision of when to end her life. Diagnosed with an aggressive form of early-onset Alzheimer's, a disease that has plagued her family for generations, she has spent years advocating for the right to choose a medically assisted death while she still possesses the mental clarity to do so.In a significant legislative breakthrough, Quebec has become one of the first regions worldwide to permit individuals with incurable illnesses to pre-plan their medically assisted deaths. This advancement has been deeply influenced by Demontigny's tireless advocacy. Despite the cognitive challenges she faces, she has remained a vocal proponent for patients' rights, sharing her personal experiences before lawmakers and the public.Her determination stems from witnessing the painful decline of her father, who was rendered unrecognizable by the same illness she now endures. In the face of her own diagnosis, rather than retreating, Demontigny embraced her role as a public figure in the fight for dignity in dying.Reflecting on her personal journey, she sat in a quiet corner, candlelit, struggling to articulate the momentous decision she is entitled to make. Demontigny has spoken candidly about the fear and uncertainty surrounding Alzheimer's, emphasizing the importance of having a say in one’s end-of-life care. Through her advocacy, she hopes to inspire others in similar situations to fight for their rights and choices, ensuring that they, too, can die with dignity.
